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GeneE
10 sources retrieved Β· Most recent: April 2026 Β· Index updated 14 days ago
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LCA5
lebercilin LCA5
Chromosome 6 Β· 6q14.1
NCBI Gene: 167691Ensembl: ENSG00000135338.15HGNC: HGNC:31923UniProt: A0A384MDJ7
38PubMed Papers
21Diseases
0Drugs
167Pathogenic Variants
FUNCTIONAL ROLE
Transporter
RESEARCH IMPACT
Variant-Rich
CLINICAL
OMIM Disease Gene
DATA QUALITY
βœ“ Experimental GO Evidenceβœ“ Swiss-Prot Reviewed
protein bindingciliary tipciliumphotoreceptor connecting ciliumLeber congenital amaurosisLeber congenital amaurosis 5Retinal dystrophyretinitis pigmentosa
✦AI Summary

LCA5 (lebercilin) is a ciliary protein essential for intraflagellar transport (IFT) in photoreceptor cilia, playing a critical role in the ciliary transport of outer segment proteins 1. Biallelic LCA5 mutations cause one of the most severe forms of Leber congenital amaurosis (LCA), characterized by early-onset, rapid photoreceptor degeneration and severe visual impairment 23. Mechanistically, lebercilin localizes at the bulge region of the photoreceptor outer segment alongside RP1 and IFT proteins (IFT81, IFT88), where it is crucial for membrane disc formation 4. Loss of LCA5 function causes abnormal localization and accumulation of ciliary proteins like CEP290 and IFT88 along the axoneme, leading to rhodopsin mislocalization, shortened outer segments, and photoreceptor cell death 23. Clinically, LCA5-associated disease presents with nystagmus, night blindness, and progressive visual loss leading to blindness by the third decade of life 5. Gene augmentation therapy with AAV8-hLCA5 shows promise when delivered early (before postnatal day 30 in murine models), achieving structural and functional photoreceptor rescue 64. Small molecule treatments (eupatilin, fasudil) show therapeutic potential in reducing ciliary protein accumulation and improving rhodopsin trafficking 2. LCA5 mutations account for approximately 7.6% of LCA cases in some populations, though frequency varies by cohort 57.

Sources cited
1
LCA is caused by dysfunctional photoreceptor cilia, with the photoreceptor connecting cilium playing a leading role in ciliopathy-related retinal dystrophies
PMID: 29534263
2
LCA5 mutations cause severe LCA; loss of LCA5 alters CEP290 and IFT88 localization, reduces outer segment length, and causes rhodopsin mislocalization; small molecule treatments can ameliorate these defects
PMID: 39934925
3
LCA5 mutations cause severe early-onset visual impairment; CRISPR correction restores lebercilin expression and ciliary localization, rescuing opsin/rhodopsin mislocalization
PMID: 37305852
4
Lebercilin localizes at the photoreceptor outer segment bulge region with RP1 and IFT proteins; LCA5 deficiency causes early axonemal defects and reduced membrane disc formation; gene augmentation preserves axoneme structure and photoreceptor survival
PMID: 37071472
5
LCA5-LCA shows rapid photoreceptor degeneration similar to mouse model; AAV8-hLCA5 gene therapy achieves structural and functional rescue if delivered before postnatal day 30
PMID: 32428231
6
LCA5 mutations account for 7.6% of Spanish LCA cohort; patients present with nystagmus, night blindness, and progressive visual loss leading to blindness by third decade
PMID: 24144451
7
LCA5 is among genes causing LCA; LCA patients show reduced retinal blood supply and pathogenic variants in LCA5 contribute to the genetic heterogeneity of LCA
PMID: 38662103
Disease Associationsβ“˜21
Leber congenital amaurosisOpen Targets
0.72Strong
Leber congenital amaurosis 5Open Targets
0.71Strong
Retinal dystrophyOpen Targets
0.54Moderate
retinitis pigmentosaOpen Targets
0.50Moderate
genetic disorderOpen Targets
0.47Moderate
LCA5-related retinopathyOpen Targets
0.40Weak
eye diseaseOpen Targets
0.37Weak
severe early-childhood-onset retinal dystrophyOpen Targets
0.37Weak
response to xenobiotic stimulusOpen Targets
0.35Weak
Leber congenital amaurosis 1Open Targets
0.34Weak
Isolated polycystic liver diseaseOpen Targets
0.34Weak
musculoskeletal system diseaseOpen Targets
0.28Weak
nervous system diseaseOpen Targets
0.27Weak
gestational diabetesOpen Targets
0.12Weak
duodenal ulcerOpen Targets
0.12Weak
optic atrophyOpen Targets
0.11Weak
gram-negative bacterial infectionsOpen Targets
0.07Suggestive
choroidal dystrophy, central areolar, 1Open Targets
0.05Suggestive
Cone rod dystrophyOpen Targets
0.05Suggestive
choroideremiaOpen Targets
0.04Suggestive
Leber congenital amaurosis 5UniProt
Pathogenic Variants167
NM_001122769.3(LCA5):c.1A>G (p.Met1Val)Pathogenic
not provided|Leber congenital amaurosis 5
β˜…β˜…β˜†β˜†2026β†’ Residue 1
NM_001122769.3(LCA5):c.42_45del (p.Lys15fs)Pathogenic
not provided|Leber congenital amaurosis 5
β˜…β˜…β˜†β˜†2026β†’ Residue 15
NM_001122769.3(LCA5):c.835C>T (p.Gln279Ter)Pathogenic
Leber congenital amaurosis 5|Inborn genetic diseases|not provided|Retinal dystrophy|Leber congenital amaurosis
β˜…β˜…β˜†β˜†2026β†’ Residue 279
NM_001122769.3(LCA5):c.142A>T (p.Arg48Ter)Pathogenic
not provided|Leber congenital amaurosis 5
β˜…β˜…β˜†β˜†2026β†’ Residue 48
NM_001122769.3(LCA5):c.149dup (p.Asn50fs)Pathogenic
not provided|Leber congenital amaurosis 5
β˜…β˜…β˜†β˜†2026β†’ Residue 50
NM_001122769.3(LCA5):c.1151del (p.Pro384fs)Pathogenic
Leber congenital amaurosis 5|not provided|Leber congenital amaurosis|Retinal dystrophy
β˜…β˜…β˜†β˜†2026β†’ Residue 384
NM_001122769.3(LCA5):c.744_750del (p.Ser249fs)Pathogenic
Leber congenital amaurosis 5|not provided|Leber congenital amaurosis
β˜…β˜…β˜†β˜†2026β†’ Residue 249
NM_001122769.3(LCA5):c.838C>T (p.Arg280Ter)Pathogenic
Retinal dystrophy|Leber congenital amaurosis|Inborn genetic diseases|not provided|Leber congenital amaurosis 5
β˜…β˜…β˜†β˜†2025β†’ Residue 280
NM_001122769.3(LCA5):c.2T>C (p.Met1Thr)Pathogenic
not provided|Leber congenital amaurosis 5|Leber congenital amaurosis
β˜…β˜…β˜†β˜†2025β†’ Residue 1
NM_001122769.3(LCA5):c.3G>A (p.Met1Ile)Pathogenic
not provided|Leber congenital amaurosis
β˜…β˜…β˜†β˜†2025β†’ Residue 1
NM_001122769.3(LCA5):c.795T>G (p.Tyr265Ter)Pathogenic
not provided|Leber congenital amaurosis 5
β˜…β˜…β˜†β˜†2025β†’ Residue 265
NM_001122769.3(LCA5):c.1062C>G (p.Tyr354Ter)Pathogenic
not provided|Leber congenital amaurosis 5
β˜…β˜…β˜†β˜†2025β†’ Residue 354
NM_001122769.3(LCA5):c.1756A>T (p.Lys586Ter)Pathogenic
not provided|Leber congenital amaurosis 5
β˜…β˜…β˜†β˜†2025β†’ Residue 586
NM_001122769.3(LCA5):c.407del (p.Ser135_Leu136insTer)Pathogenic
not provided|Leber congenital amaurosis 5
β˜…β˜…β˜†β˜†2025β†’ Residue 135
NM_001122769.3(LCA5):c.1466del (p.Leu489fs)Pathogenic
Leber congenital amaurosis 5|not provided
β˜…β˜…β˜†β˜†2025β†’ Residue 489
NM_001122769.3(LCA5):c.763C>T (p.Arg255Ter)Pathogenic
not provided|Leber congenital amaurosis 5|Retinitis pigmentosa|Polycystic liver disease 2
β˜…β˜…β˜†β˜†2025β†’ Residue 255
NM_001122769.3(LCA5):c.859-2A>GLikely pathogenic
not provided|Leber congenital amaurosis 5
β˜…β˜…β˜†β˜†2025
NM_001122769.3(LCA5):c.516_519del (p.Lys172fs)Pathogenic
Retinitis pigmentosa|not provided|Leber congenital amaurosis|Leber congenital amaurosis 5
β˜…β˜…β˜†β˜†2025β†’ Residue 172
NM_001122769.3(LCA5):c.1062C>A (p.Tyr354Ter)Pathogenic
Leber congenital amaurosis 5|not provided
β˜…β˜…β˜†β˜†2025β†’ Residue 354
NM_001122769.3(LCA5):c.1273del (p.Ala425fs)Pathogenic
not provided|Leber congenital amaurosis 5
β˜…β˜…β˜†β˜†2025β†’ Residue 425
View on ClinVar β†—
Related Genes
USH2AProtein interaction93%TRAPPC8Protein interaction85%TRAPPC4Protein interaction85%TRAPPC2LProtein interaction85%TRAPPC1Protein interaction85%TRAPPC9Protein interaction85%
Tissue Expression6 tissues
Bone Marrow
100%
Brain
70%
Ovary
33%
Heart
25%
Lung
11%
Liver
4%
Gene Interaction Network
Click a node to explore
LCA5USH2ATRAPPC8TRAPPC4TRAPPC2LTRAPPC1TRAPPC9
PROTEIN STRUCTURE
Preparing viewer…
AlphaFoldAI-predicted Β· UniProt Q86VQ0
View on AlphaFold β†—
Constraintβ“˜
LOEUFβ“˜
0.88LoF Tolerant
pLIβ“˜
0.00Tolerant
Observed/Expected LoF0.65 [0.49–0.88]
RankingsWhere LCA5 stands among ~20K protein-coding genes
  • #10,504of 20,598
    Most Researched38
  • #446of 5,498
    Most Pathogenic Variants167 Β· top 10%
  • #7,868of 17,882
    Most Constrained (LOEUF)0.88
Genes detectedLCA5
Sources retrieved10 papers
Response timeβ€”
πŸ“„ Sources
10β–Ό
1
[Ciliopathies].
PMID: 29534263
Klin Monbl Augenheilkd Β· 2018
1.00
2
Small molecule treatment alleviates photoreceptor cilia defects in LCA5-deficient human retinal organoids.
PMID: 39934925
Acta Neuropathol Commun Β· 2025
0.90
3
CRISPR-Cas9 correction of a nonsense mutation in
PMID: 37305852
Mol Ther Methods Clin Dev Β· 2023
0.80
4
Gene augmentation of LCA5-associated Leber congenital amaurosis ameliorates bulge region defects of the photoreceptor ciliary axoneme.
PMID: 37071472
JCI Insight Β· 2023
0.70
5
Treatment Potential for LCA5-Associated Leber Congenital Amaurosis.
PMID: 32428231
Invest Ophthalmol Vis Sci Β· 2020
0.60